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Improving outcomes for early inflammatory arthritis patients

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Improving outcomes for early inflammatory arthritis patients

Inflammatory arthritis (IA) refers to a group of conditions which affect the immune system. The three most common forms of inflammatory arthritis are rheumatoid arthritis; ankylosing spondylitis and psoriatic arthritis. The course of these diseases are variable and unpredictable but for a significant number of patients it is a severe group of diseases resulting in persistent pain, stiffness, progressive joint destruction, functional decline and in some cases premature mortality.

Goal of early treatment

The goal of early treatment for IA is to achieve clinical and radiological remission and reduce functional limitations and permanent joint damage. There is strong evidence supporting the case for early, aggressive intervention in patients suspected with early inflammatory arthritis (EIA). Ensuring that EIA patients are seen, diagnosed and treated as early as possible has been core to a number of important publications in recent years including NICE Quality Standard 33 as well a British Society of Rheumatology Guidelines.

Experiencing unnecessary delays

Nationally, there is evidence that people with IA experience unnecessary delays between presentation with symptoms and subsequent referral, diagnosis and treatment. Variations in primary care education, referral mechanism and resource in local Rheumatology service have all been recognised as contributors to this problem.

The Oxford AHSN Inflammatory Arthritis Network has been established since early 2015 and is led by Prof. Peter Taylor, Norman Collison Professor of Musculoskeletal Science at the University of Oxford. The IA network is made up of Consultants, Registrars and Specialist Nurses in Rheumatology, Pharmacists, Transformation Leads and Commissioners and also primary care physicians and patients.

Developing plans

The network are currently developing plans for two regional campaigns to develop patient awareness of EIA and also to improve GP understanding of EIA and the importance of earlier recognition, diagnosis and treatment.

The angry hand

Too often, people ignore the early signs of inflammatory arthritis leading to avoidable long-term damage. To help raise awareness, we created a giant, blue, attention-grabbing hand and took it to various locations in the UK.

There was a speaker inside (remotely voiced by a comedian) so it appeared to passers-by that the hand was ‘talking’ to them and trying to get their attention.

We are creating a video based on reactions to the ‘angry hand’ to raise awareness of the need to visit your GP swiftly if you experience the early symptoms of inflammatory arthritis.

For more information please visit the Angry Hand website.

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Contact

For more information on this project or to be involved please contact James Rose.

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